How many of you are familiar with celiac disease? Even if you’ve never heard of it, chances are you’ve noticed more and more “gluten-free” products popping up at local grocery stores and even on menus at restaurants like Outback Steakhouse and Bordino’s.
The glut of gluten-free products has people with celiac disease dancing in the aisles.
At the invitation of a friend, I recently checked out a meeting featuring some big players in the celiac disease arena: Alice Bast, founder of the National Foundation for Celiac Awareness, and Vanessa Maltin, director of programming and communications for the foundation and author of the cookbook “Beyond Rice Cakes.”
The two were in Northwest Arkansas to meet with Wal-Mart executives. I don’t have the disease, but the meeting room at Ozarks Electric Cooperative in Fayetteville was filled with people from across Northwest Arkansas who suffer from celiac, an autoimmune digestive disease that’s triggered by eating the protein called gluten which is found in wheat, barley and rye. Some were newly diagnosed and looking for information about living with the disease.
Alice shared with them that before she was diagnosed, her first baby was still-born, she suffered through multiple miscarriages and her oldest child was born at two pounds. Like so many others in the room, it took her many years to find a diagnosis. Alice said her mother died of pancreatic cancer at age 52 and she found out that undiagnosed celiac diseases can lead to that type of cancer.
But the meeting also had some fun mixed in with the facts: there were gluten-free food samples from Outback Steakhouse and Harp’s grocery store and Vanessa demonstrated cooking a few recipes from her cookbook. Her noodle soup was delicious and the chocolate chip cookies looked great, but I didn’t try them (I was kicking myself on the way out for that one).
Sherry Ponder-Roth, the “natural solutions manager” at Harp’s, said when she first started the job three years ago it occurred to her there was a need for a gluten-free section in the store.
“It was taking people so long to shop because they had to read the labels on everything,” she said. “So it made sense to pull it all together.”
Sherry said the disease is becoming more prevalent and even warehouse catalogs have started offering a gluten-free section for her to order from.
After looking at pamphlet from the foundation, I saw that some common symptoms of celiac disease are: digestive issues like diarrhea or constipation; discolored teeth or loss of enamel; fatigue; joint pain; significant unexplained weight loss; fractures or thin bones; canker sores; tingling or numbness in hands and feet; itchy skin rash; and missed menstrual periods. Alice told me there are specific blood tests that can tell a doctor whether that’s the problem. I left the meeting informed and newly aware of what “gluten-free” really means to many people trying to manage their celiac disease.
For those in Northwest Arkansas there’s a support group called ROCK (Raising Our Celiac Kids). It started out as a group for parents of children with the disease, but it has grown to include adults as well. There is also an online resource available — ArkansasROCK. For more information about either group, call Melanie Faught at 479-582-9232.